I saw today it's been one month since I posted. Really, I am super busy thanks to the lovely health care system in Brazil. Yeah, you see once you take an exam here later you must return to pick up the results. My baby is just full of exams, they don't stop. Plus, appointments, plus picking up exams and plus vaccinations. Which after this month we won't need more vaccinations for a while.
However, it's mostly I don't have the heart to write. My son has been displaying seizure like activities, I think five days after he came home he had a simple partial seizure. Which means that it's not really much to worry about, however if the activity grows it can become a serious problem. And on top of it everyone thinks I'm crazy and paranoid. My mother, mother-in-law, my husband well accept the doctors. So Luca was readmitted to the hospital for two days, No more activity. We were sent to the specialist who thought Luca looked perfect and watched some videos I recorded. We asked to get an EEG done.
Well the EEG was done pretty quickly but it took seven days to get our results. Which showed Luca was having some minor activity and during the part of the test where they try to give the person a seizure he kicked his left leg. Three days ago when we were on the way to get his two month vaccines he had another simple partial. I knew it right away. I can say this past month has been spent watching Luca like a hawk. I haven't seen anything, he does have spasm like movement from reflux but now I now the difference. Everyone told me it was just reflux but in the back of my mind I didn't think so.
I called his specialist who sent me to one of the best doctors I have talked to. I went through exactly what happened and his test results that the doctor was suppose to receive this upcoming week. He said Luca needed to get on medication. And I asked him about the vaccine we were on our way to, his said to wait on that. Because vaccines can cause seizures. I knew this, my husband had this huge blow out because I wanted to wait on the vaccine until after we saw the specialist again. I honestly believe Luca having this seizure probably prevented a way worse situation.
Luca went through a long series of tests which he took last month to see if he was neurologically sound. Everything was perfect, but the doctor said Luca would be on medication for the next two years to prevent seizure activity which could damage the brain if a tonic clonic were to happen.
I could go into the reflux and everything. But it's too much. Really that's why I am not in the mood to write. I have too much on my plate mentally. I get to enjoy a lot of things. And Luca gets better everyday and his is ahead on milestones. Two weeks ago he started smiling like crazy which is so much fun.
Only the situation I just went through on top of having your baby hospitalized for 22 days really doesn't make you want to blog. Only maybe it's the best time to. I don't know.
Well, there is a great plus. I did all this and all these medication issues AND had a meeting alone with doctors everyday for 22 days in Portuguese. I'm not saying that I am fluent but I am proud of my language accomplishments.
However, it's mostly I don't have the heart to write. My son has been displaying seizure like activities, I think five days after he came home he had a simple partial seizure. Which means that it's not really much to worry about, however if the activity grows it can become a serious problem. And on top of it everyone thinks I'm crazy and paranoid. My mother, mother-in-law, my husband well accept the doctors. So Luca was readmitted to the hospital for two days, No more activity. We were sent to the specialist who thought Luca looked perfect and watched some videos I recorded. We asked to get an EEG done.
Well the EEG was done pretty quickly but it took seven days to get our results. Which showed Luca was having some minor activity and during the part of the test where they try to give the person a seizure he kicked his left leg. Three days ago when we were on the way to get his two month vaccines he had another simple partial. I knew it right away. I can say this past month has been spent watching Luca like a hawk. I haven't seen anything, he does have spasm like movement from reflux but now I now the difference. Everyone told me it was just reflux but in the back of my mind I didn't think so.
I called his specialist who sent me to one of the best doctors I have talked to. I went through exactly what happened and his test results that the doctor was suppose to receive this upcoming week. He said Luca needed to get on medication. And I asked him about the vaccine we were on our way to, his said to wait on that. Because vaccines can cause seizures. I knew this, my husband had this huge blow out because I wanted to wait on the vaccine until after we saw the specialist again. I honestly believe Luca having this seizure probably prevented a way worse situation.
Luca went through a long series of tests which he took last month to see if he was neurologically sound. Everything was perfect, but the doctor said Luca would be on medication for the next two years to prevent seizure activity which could damage the brain if a tonic clonic were to happen.
I could go into the reflux and everything. But it's too much. Really that's why I am not in the mood to write. I have too much on my plate mentally. I get to enjoy a lot of things. And Luca gets better everyday and his is ahead on milestones. Two weeks ago he started smiling like crazy which is so much fun.
Only the situation I just went through on top of having your baby hospitalized for 22 days really doesn't make you want to blog. Only maybe it's the best time to. I don't know.
Well, there is a great plus. I did all this and all these medication issues AND had a meeting alone with doctors everyday for 22 days in Portuguese. I'm not saying that I am fluent but I am proud of my language accomplishments.
You're a strong woman, Nina. My thoughts and prayers are with you, Luca, and your husband. I'm glad to hear that he's had great test results.
ReplyDeleteThanks Mer, I think my son is the strong one. I think things are such a downer for me because of women's guilt. My husband doesn't seem concerned, he thinks Luca is perfect.
ReplyDeleteI think the reflux is worse, I just feel guilty about his hospitalization. I really think the reflux is something insane to live with, makes a quite unhappy baby. And our gastro, thinks he doesn't really have a problem. Can't wait to show her the video of him back arching and screaming he head off for 20 minutes after feeding.
This makes me sad (the video) =(
DeleteI know what you mean about mother's guilt.
It's great that we have video. Seems sometimes people don't believe you or take you seriously. I have done a lot of research and doctors really don't back a lot of moms up.
DeleteOur gastro is like this, even though my baby came off of a feeding tube and it should actually be assumed that he doesn't feed well. And I have tried everything to produce enough milk but I don't. Water Engelesa, drinking 3 liters of water daily, natural juice, dark beer, medication and pumping-- it seems like nothing works.
So he does need to drink formula which makes his reflux terrible. I can't believe that I am dying for him to move onto solids so I can breastfeed, do solids and not feel like crap about it all.